Wednesday, April 23, 2014

Organizing Autism

Today I'd like to talk about organization. Organization in some areas of your life will help you avoid long term headaches, especially now that you have a serious diagnosis in your life. I hope you find these tips thought provoking and a helpful starting point.

One of the first things I personally bought for my son's records was an accordion file. I now have two of them. Find a filing system that works for you. I'm considering moving all my files to a binder or tapper keeper. If you decide to use a binder I would strongly suggest one that zips closed. It will help keep paperwork inside that may work loose over time or with use, also consider page protectors, so you don't have to punch holes in important paperwork. Whatever works best for you is ideal, just make sure it is portable. I bring Aiden's files to all new doctor appointments, new therapist appointments, and will be bringing it to the school every new class year. Why? You never know what you will need. It keeps everything in one place and safe. Organizing your medical paperwork will save you hassles in the long run. I have made a section for each doctor, each therapist, insurance information, copies of his birth certificate/ social security/ and insurance card, grants, diagnosis and test results. Here is a great site with tips for creating your special needs binder:

Consider tracking your child's behavior, diet, etc with an app for your phone. Yes, they make them and a lot of them are really good. I use one called Autism Tracker. It uses a picture guiding system for your logs and it cover tons of areas. It even has an option to track more than one child and to email reports to who ever you designate, which is hugely helpful for therapists. There is also an app I used called ShopWell. This is great for diet purposes. All you do is mark allergens or any other areas you'd like to avoid. When you go shopping open the app and scan the bar code. The app will tell you if there is something in the food you need to avoid, based on what you told it. 

You will find that your individual child with Autism will gravitate toward certain toys or interests. Aiden was drawn to cars while in his one's and two's, but now in his three's he is drawn to wrestlers. In fact it’s safe to estimate he owns 20+ wrestlers at this point. Buy those storage boxes! He has a bin with latching top for his "guys" which are his superheroes and action figures and a completely separate box for his wrestlers. They cannot be combined and he knows each one individually. Don't think you can hide one from him either, he knows which figures he has and asks for one's he does not. These boxes will provide not only sanity for you, but a cue for your child. Every child keeps things in a constant state of mess, but these identifiable boxes help them find the toys that mean most to them. And they are a lifesaver during clean up. 

Try to create areas in your home with specific purposes. An area for eating, sleeping, playing, and homework or life skills is a good foundation. Most of this is already created by the natural flow of a home and don't think it has to be a room for each function. A desk in the child's room can be assigned for homework only. Do not allow toys or play things on the desk, which is a desk for homework only. Keep a light on the desk that is on for homework and off every other time. When the homework light is on, turn off or dim as many other lights in the room as possible, this helps create a mental barrier and may help promote focus. I have heard a mother with an Autistic child talk about setting a timer for homework.
Homeschool Organization Ideas
The problem with Autism is also its gift. Intense focus on areas they love and lack of interest in areas they do not. The timer makes it a kind of game and may help engage your child in a subject they do not enjoy. Her son is rewarded with time on a video gaming system. Push your creativity in this area. Find out what they like and use that to your advantage. 

Aiden helps me put his laundry away. Amazing? No, kids love to help in general, use that to your advantage. How does Aiden help me put clothes away? I put pictures on the outside of each respective drawer. For example, his T-shirt drawer has a blue t-shirt picture on it. This helps him learn what each item is and it helps him find what drawer he is looking for quickly. Just a tip, don't bother folding their clothes. Sounds funny, but what is honestly accomplished by folding your child's clothes or is it one of those social norms that everyone falls into? Why do I say not to fold? Well my child pulls all his clothes out of his drawers and throws them around the room. He is fascinated by the different colors and textures of his clothes. Instead of getting mad, why not just put them back and move on? As he gets older I will teach him how to fold and teach him why it is socially acceptable to do so, but now I'm much happier not to fold. Everything is a give and take, weighing out what you are willing to do. I am not willing to fold his whole wardrobe five times a day. Thankfully we have almost completely stopped the clothing redecorating from him. 

Helpful for older children with Autism is a large visual calendar. If your child cannot read, use picture calendars. The calendar can be a tear away desk calendar or a large magnetic calendar. Assign each family member a color or picture. Then write out the entire family calendar every month. It will not only help your whole household, but it is important for Autistic individuals to feel in control of their environment. If they know what is happening in the life of the family and they can see what events they will be attending, it helps them anticipate the upcoming event. It is also a social cue indicator. For instance, if there is a wedding, there are more social graces necessary for that event than attending a school PTA meeting. It helps the person mentally prepare for this event and they don't feel surprised by their everyday life. Here is a simple example of a picture calendar for Autism, created by the CARD program: 


If you want to create a meal calendar for the month, feel free. It gives the kids a menu to look through for the day and it lets them know what your meal expectations of them are. For instance if you want your kids to eat a Lunchable for lunch instead of a sandwich, since soup and sandwiches are for dinner, then putting it on a menu could avoid an argument over Lunchable vs. sandwich all together. "This is the menu we follow and this is what you will be eating" is a solid reason and it helps shift any kind of blame off you and toward the menu. A menu simplifies your life, since your partner will know what to help you prepare and it makes looking ahead easier during food preparation. This gives your Autistic child a "play book" of food and these kids love rules with clear expectations.

Feeding into the rule situation, my family created a "Rule Board". This is a cork board with construction paper stapled to it. My son helped me create the board, he picked the colors, and we wrote each rule with each applicable consequence together. This helped him learn the "rules" and the written consequences provide a constant guide for a parent who maybe frustrated or angry at the time of punishment. Parents are not perfect and sometimes having something else does the "thinking" for you will help. Be consistent with your punishment. This is true for every child, but especially with your Autistic child. Talk to your ABA therapist and include your spouse or significant other in these topics. Tell other people who care for your child what consequences you expect for certain actions. This keeps consistency across the board and reinforces the teaching. Invest in a small timer to keep near the time out area. This will give an audible tone when the consequence has concluded and the child can return to their activities. 


Finally, let’s talk about going outside. When you leave your home you will always have something with you for your Autistic child. My son's Nabi is a constant fixture in my bag. I have transitioned from a purse to a backpack; it’s just easier for me. I carry water, snacks, and diapers with me always, that's the price for motherhood. When I go out with Aiden my bag expands a little, with the Nabi, a wrestler or two, maybe a book or coloring book. You must travel with items your child like and are acceptable focus items for them. It will save you in the long run. I leave some of these things in my bag, they never leave it. I am going to be purchasing a backpack for Aiden that he will learn to pack up and take with him. Independence teaching is vital to future life. Control of their environment is key.

Show me how you are doing! Post your creative ideas on our Facebook page- Aiden's Heroes or post pictures as a comment to this blog. Share your creativity with others and help them along their journey as well. You always have a voice here, with us.

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